Introducing Speak Up, See Me
This September marks Children's Growth Awareness Week from September 14-20th, and International Children's Growth Awareness Day on September 20th.
Both moments focus on improving understanding of healthy growth in children and young people, raising awareness of growth conditions, and encouraging parents, caregivers and healthcare professionals to monitor growth over time and seek advice where there are concerns.
This year, our campaign theme is Speak Up, See Me.
A growth chart can never tell the full story. Growth conditions affect far more than height. They can shape confidence, wellbeing, school life, family life and future opportunities, and this is felt by the whole family, not just the individual.
Speaking up means challenging assumptions, shifting perceptions, and making sure the people behind the diagnosis are truly visible. Last year, Speak Up gave this community a platform and the world began to listen. This year, we are going further.
Now it is time to Speak Up and Be Seen.
Speak Up, See Me: Children's Growth Awareness 2026
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Speak Up, See Me: Children's Growth Awareness 2026 ✳︎
What we are asking you to do:
We are inviting patients, families, caregivers, advocates, and healthcare professionals to take part by sharing their own stories, in their own words. Every story shared helps change the way people think about growth conditions and brings new voices into the conversation.
»Joining our campaign
Use our Speak Up, See Me guidance to learn more about the campaign, covering campaign goals, look and feel, filming tips, example prompts and hashtags, suggested social formats and how to edit the digital Canva frames.
»Print your own frame
Download the print-ready physical prop frame file, for organizations who would like to print and use a physical frame for photos and video
»Download our digital frames
Layer our digital Speak Up, See Me frames over your social media content to show your support for Child Growth Awareness.
Speak Up, See Me: Children's Growth Awareness 2026
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Speak Up, See Me: Children's Growth Awareness 2026 ✳︎
Child Growth Awareness 2026 Webinar
To learn more about how you can get involved in Speak Up, See Me this year, join our webinar on
Tuesday, July 21st at 3:30pm CEST/ 9:30am EST / 6:30am PST / 2:30pm BST
to discover more about the campaign, our ambitions and how you can show your support.
We understand that schedules can change or yours may not work with the time our webinar is offered. If that is the case, no worries!
We recorded it so you can watch it anytime that works for you!
Please click the button below to watch the recorded webinar.
Speak Up, See Me: Children's Growth Awareness 2026
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Speak Up, See Me: Children's Growth Awareness 2026 ✳︎
*Important information: The Speak Up, See Me campaign represents the views of ICOSEP and supporting patient groups. This campaign is non-promotional and not specific to any treatment or therapy. This campaign was developed in partnership between ICOSEP and Novo Nordisk, with funding from Novo Nordisk Health Care AG.