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Terms and Consent for Quality of Care Survey Data
ICOSEP
Introduction
ICOSEP is committed to protecting the privacy and confidentiality of all participants in our Quality of Care survey. This document outlines the terms and conditions of participation, as well as the consent required for the use and sharing of survey data in accordance with the European Medicines Agency (EMA) data privacy regulations and cross-border data sharing protocols.
Purpose of the Survey
The Quality of Care survey aims to gather insights into patient experiences and satisfaction with healthcare services. The data collected will be used to identify areas for improvement, advocate for better healthcare policies, and enhance the overall quality of care provided to patients.
Data Collection and Use
· Data Types: The survey will collect both qualitative and quantitative data, including personal information, health status, and feedback on healthcare services.
· Data Usage: The data collected will be used for research and analysis purposes. It may be shared with healthcare providers, policymakers, and researchers to inform decisions and improve healthcare services.
· Anonymity: All data will be anonymized before being shared to ensure the privacy of participants.
Consent
By participating in the Quality of Care survey, you agree to the following terms:
· Voluntary Participation: Participation in the survey is entirely voluntary. You may withdraw at any time without any consequences.
· Data Sharing: You consent to the sharing of your anonymized data for research and analysis purposes in accordance with EMA data privacy regulations.
· Cross-Border Data Sharing: You consent to the sharing of your anonymized data across borders within the European Union and affiliated countries, following EMA data privacy guidelines.
Data Privacy and Protection
ICOSEP adheres to strict data privacy and protection standards, including:
· Compliance: Compliance with EMA data privacy regulations and GDPR (General Data Protection Regulation).
· Data Security: Implementation of robust data security measures to safeguard your data against unauthorized access, loss, or theft.
· Data Retention: Retention of data for a period necessary to achieve the survey’s research objectives, after which data will be securely deleted.
Rights of Participants
As a participant in the Quality of Care survey, you have the following rights:
· Access: The right to access the data you have provided.
· Correction: The right to correct any inaccuracies in your data.
· Deletion: The right to request the deletion of your data.
· Objection: The right to object to the processing of your data.
Contact Information
If you have any questions or concerns regarding the terms and consent for the Quality of Care survey, please contact ICOSEP at ashley.gilmer@icosep.org.
Conclusion
Thank you for your participation in the Quality of Care survey. Your insights are invaluable in helping us improve healthcare services and advocate for better patient care.